British Society of Blood and Marrow Transplantation and Cellular Therapy
an organisation for those with a professional interest in haematopoietic cell transplantation and cellular therapies
CONCLUSION
CONCLUSIONS
The majority BSBMTCT member centres/DMS favour using Med-A HSCT forms over Med-B HSCT forms, which are seen as time consuming and complex. When the new EBMT database goes live and there is a period-of-time when Med-B HSCT data cannot be entered or accessed it will not pose a problem for the majority of BSBMTCT member centres and their DMS.
There are, in total, 5 DMS who have requested an export of Med-B data before ProMISe is frozen. Four of which come from Med-A only centres and so require access to the historical Med-B data. Only one of which comes from a Med-B only or combination Med-B and Med-A centre. It is interesting that more requests came from DMS at Med-A only centres.
Three (50%) responding DMS from Med-B only or combination Med-B and Med-A centres felt that if they couldn’t complete or enter Med-B forms for a period-of-time it would have an impact on them. To help them during this period two of the affected DMS were willing to implement different strategies:
- DMS at 1 centre would consider collecting Med-B data on spreadsheets, temporarily switch to Med-A forms and have an export of Med-B items (prior to ProMISe being frozen) to help them.
- They mainly need Med-B data for site/team records, additional information and reports. The information that is important to them is Virology, History fungal infection, Cell counts, Chimerism, Complications and Karnofsky. They do approximately 50 Med-B forms (irrespective of type) in a year.
- Another centre would consider collecting Med-B data on spreadsheets and temporarily switch to Med-A forms. They didn’t require an export of Med-B items (prior to ProMISe being frozen).
- They mainly need Med-B data for research spreadsheets and their own records. They do approximately 12 Med-B forms (irrespective of type) in a year.
- One of the centres however, were unwilling to switch to Med-A forms, even temporarily, as they need the Med-B data. They didn’t know if they wanted to use spreadsheets or have an export of Med-B data (prior to ProMISe being frozen) to help them while there was no EBMT database supporting Med-B data.
- They mainly need Med-B data for study data and centre outcomes. They do approximately 140-150 Med-B forms (irrespective of type) in a year.
A large Med-B centre the new EBMT database with its limited Med-B functionality could pose a big problem for them when it goes live. This will hopefully be a short-term issue for them but it could be worth the centre planning for longer-term Med-B disruption.
Unfortunately, 15 centres and their DMS did not respond so we don’t have a complete picture on how important Med-B functionality in the new EBMT database will be to them.
British Society of Blood and Marrow Transplantation and Cellular Therapies
Guy's Hospital, Great Maze Pond London.
SE1 9RT United Kingdom
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